Special needs experts in Nigeria are sounding the alarm over the damaging effects of negative stereotypes, social exclusion, and stigma that continue to plague children with disabilities. At a recent conference in Lagos, organized by Treasured Kids Foundation (TKF), these experts called for urgent action to prioritize the needs of this vulnerable group.
Themed “Raising a Community of Change with One,” the event highlighted the ongoing challenges faced by children with special needs and their families. Speakers urged both federal and state governments to adopt inclusive policies, emphasizing that the Lagos State government’s focus on health and education for children with disabilities should serve as a model for the rest of the country.
In her remarks, Dr. Olufunmilayo Bankole, Permanent Secretary of Lagos State Health District 1, spoke about the profound impact of congenital abnormalities, which often result from genetic disorders present at birth. “Though rare, these disorders are life-altering, often leading to lifelong emotional and financial strain on families,” she explained. “Children with these conditions need special attention in all aspects of life, from healthcare to education, as they are more vulnerable than other children.”
Bankole encouraged parents to take proactive steps in addressing the needs of their children with disabilities. “It’s crucial that families are empowered with the knowledge of proper nutrition, treatments, and educational options for their children. We must also ensure that healthcare and education systems work hand-in-hand to support these families.”
Mrs. Oluronke Kalejaiye, Founder of TKF, reflected on her personal journey as a parent of a child with Myotubular Myopathy (MTM), a rare neuromuscular condition. This experience inspired her to establish TKF to create a platform where families, caregivers, and professionals could share knowledge and support one another. “Our goal is to foster a community that embraces children with disabilities, raising awareness about conditions often overlooked in Nigeria, and breaking down the barriers of ignorance and stigma,” Kalejaiye said.
Pharmacist Sarah Akerele, Chief Communications Officer of TKF, further stressed the importance of community involvement.
“We must work together to eradicate the stigma surrounding children with disabilities. By raising awareness and promoting inclusion, we can create a society where every child, no matter their ability, is given the chance to thrive,” she said, calling for more grassroots education and advocacy efforts.